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Wednesday, January 15, 2014

when you pray crazy prayers


It's hard to hear big ugly words coming from such a small beautiful place.

I HATE you mommy!  I do not like you at ALL!  I wish you were NOT my mommy!  And I wish I didn't have a brother either!


Sticks and stones break your bones...

and what was that part about words never hurting?
The hate-filled words of your child break more than bones.  

I guarded myself from their meaning early this morning.  It's not the first time I've seen them coming like arrows for me.  By the grace of God, a deep breath with eyes closed makes their penetration into my heart less painful.  


It's only a matter of minutes before the attacking screams turn to repentant cries.  And the roller coaster ride of Graves disease barrels forward.  

I hold and hug and rock her on my knee.  We talk about how it could have gone better, knowing that the same sequence will repeat itself again before the week's end.  And then I wrap her up in it...unconditional love...limitless grace...that I promise to offer every day...all the time.  I whisper silent pleading prayers that it will be enough to heal the wounds in both our hearts.

Lately I have spent many of my words on our experience with Lucy's diabetes diagnosis.  Initially the identification of Graves Disease seemed like a minor sideshow...but it quickly took center stage.


The doctor told us almost as if it were an afterthought...

  by the way - her thyroid hormones are also elevated so we are testing her for Graves Disease.  

I was already so overwhelmed with the learning curve that comes with T1D that I kept this additional information tucked away in a separate compartment of my brain until I had the capacity to open it back up and understand.  


When the Graves diagnosis was confirmed I took the bottles of pills they gave me and figured out how to slide them down her throat in a puddle of yogurt.  I assumed the latest of her autoimmune disorders would wait patiently in the corner while I got a good handle on the one right in front of me...I was wrong.  This one didn't sit quietly.  This one demanded my attention with sobbing and yelling and fits of rage.  I quickly realized that it was a box of explosives I had so naively set to the side.  Hormonal imbalances in a five-year-old are no joke.


Yesterday I wrote about grace but today I want to tell you that we are daily living it...  

...the receiving and the giving.  
At some point we must practice what we preach...or what we have heard preached.  
Otherwise it will evaporate and leave nothing lasting behind.

This season of my life has made me desperate for God's grace.  

As my pastor said on Sunday...in this time and place in which we live we are not desperate for much.

It is a blessing but if we're not careful...it becomes our curse.  This life of privilege we live.
When you live in a world where you can pretty much get anything you want with a credit card and a smile you start to feel like you don't need anyone or anything else.
And that lie slowly lulls us to sleep until a desperate situation wakes us back up again to this truth...

Desperation is the fertile ground upon which our faith grows.

It just might be the craziest prayer we ever pray but it also might be the most important...


God give me a desperate heart.


In the place where I come to the end of myself...
where I don't know what to do...
where I have no control...
where things are beyond my understanding...
where I am desperate...
I plead for grace.
I beg for it to stand guard over my lips.
To bring gentleness to my eyes.
To hold still my hands and heart.
And it does.

There have been seasons of less stress in which I have snapped and lost my ever-loving mind and lived full of regret and yet this one has been ushered in with winds of peace.  In my desperation I have watched my faith in myself grow small as my faith in Him has grown big.  My reserves would have long since dried up, but by His power we flourish like a well-watered garden.


What do you say?  Might we be brave enough to step together onto the shaky ground of desperation and watch faith grow right before your eyes?  Might we be ready to to stop avoiding desperate situations or trying to plow through them as fast as we can?  Might we instead allow for the discomfort of the things we can not change to change us?


The comfortable seasons of life lead us to see Jesus as we imagine Him to be.  
But these days of desperation, they take us beyond imagination to the truth of who He really is... ...everything we need.

God give me a desperate heart.

9 comments:

Unknown said...

Elizabeth, may God continue to fill you up with His grace as you face such mighty struggles and reveal ever more blessings in these days of desperation. Only our Amazing God could do something so wonderful!

Unknown said...

Gosh this is so good. Thank you for putting these thoughts on the page so we can read them. Continued prayers for you and your beautiful family.

elizabeth said...

sabra and amanda - you bless me with your words and prayers...seriously...thanks. what a gift to be able to share our lives in community with each other!

Angie Mizzell said...

I think we were reading each other's blogs at the same time this morning. I'm a big fan of crazy prayers. I said one earlier this week - and funny, it just looked a lot like the truth about what I was experiencing internally, not avoiding it, and admitting it. And in your case, when your kids need you to rise up and be strong, in ways you never imagined... I suppose it puts a lot of other things into perspective. I'm so sorry that your family is carrying this burden, but I pray you will also be blessed because of it. xo

Anonymous said...

I am with you on this one, Elizabeth. As we continue to struggle with Wesley's issues (still not sleeping through the night at 3 1/2...), I so appreciate you sharing your struggles with Lucy. I so want this season to be OVER, but I'm beginning to realize that maybe God wants to change ME through things that I cannot change. Well said :). Praying for you, friend!

Lindsay

Meri said...

Wow! So much truth! Thank you for articulating it so well!

elizabeth said...

angie - i had a feeling you were a crazy prayer prayer too : )

elizabeth said...

lindsay - 'God wants to change me through things i cannot change' - now that is some good truth! hard truth...but good. praying for you too! xo

Unknown said...

Your feelings are so beautifully portrayed and your words are so heartfully felt! Having a child with Graves Disease is so very difficult in so many ways. Our Michael's in the third year of his journey with it. It has been a road that I wouldn't want anyone else to travel on...but many of us do. Thankfully, we aren't on that road alone! I am so grateful that you found our Graves Disease Moms group! We have such an unparalleled understanding of each other and our challenges with managing our child's health while at the same time managing the "side effects" of how the disease manifests itself in so many other ways like behavior, attitudes or judgment of others watching our child, etc. It's a whirlwind! Your blog, today, depicts the disease and the emotional struggle of you and your innocent, multi-autoimmune-diseased child. Your words are so very touching...and so very relatable, too. I am confident that you'll find immeasurable guidance, answers and solutions that you need to get your child, and yourself, to an optimum level of care and just as importantly...peace. Thank you for sharing your heart through your blog. It is so eloquently written. I have truly heard your heart through your words!